--- title: "Help and Information on Amyloidosis | Amyloidose Schweiz" description: "Discover comprehensive information, counseling and support for amyloidosis. We promote research and offer patients and families a strong community." canonical_url: "https://www.amyloidose-schweiz.ch/en" locale: en meta: "og:description": "Discover comprehensive information, counseling and support for amyloidosis. We promote research and offer patients and families a strong community." "og:image": "https://www.amyloidose-schweiz.ch/og-image.png" "og:image:height": "630" "og:image:width": "1200" "og:title": "Help and Information on Amyloidosis" --- > Index of every page on this site: [llms.txt](https://www.amyloidose-schweiz.ch/llms.txt) # Amyloidosis Switzerland **Together strong against amyloidosis. We support patients and families with information, counseling, and promote research for better treatment options.** [**Learn more about amyloidosis**](https://www.amyloidose-schweiz.ch/en/grundlagen/ueber-amyloidose) [**Become a member**](https://www.amyloidose-schweiz.ch/en/verein/mitglied-werden) ![Symbolic image: Medical equipment and devices for the diagnosis and treatment of amyloidosis](https://www.amyloidose-schweiz.ch/images/hero-image-w768.webp) ## What is Amyloidosis? Amyloidosis is a rare disease in which misfolded proteins (amyloid) accumulate in organs and tissues. These deposits can impair the normal function of various organs. Early diagnosis and treatment are crucial for disease progression. ### **Rare Disease** Amyloidosis affects only a few people and is often diagnosed late. ### **Multiple Types** There are different forms such as AL, AA, ATTR amyloidosis with different causes. ### **Early Detection Important** The earlier amyloidosis is detected, the better the treatment options. ### **Affects Multiple Organs** Heart, kidneys, nerves and other organs can be affected. [**Learn more about amyloidosis**](https://www.amyloidose-schweiz.ch/en/grundlagen/ueber-amyloidose) ## Latest **NEW! ** ### [ATTR amyloidosis information event in Vienna – October 29, 2026](https://www.amyloidose-schweiz.ch/en/news/info-event-vienna-attr-oct2026) **14 September 2026** The association «Leben mit Amyloidose – Amyloidosis Austria» invites patients and their relatives to the information event «ATTR amyloidosis». The event is also live streamed – online participation is possible. - Basics of ATTR amyloidosis - Current therapies and new developments - Mental strength in coping with the disease - ATTR beyond the heart, e.g. orthopaedics and gastroenterology - Participation on site in Vienna or online via livestream Registration Thursday, October 29, 2026, 5:00 PM | Hotel Zeitgeist Vienna, Sonnwendgasse 15, 1100 Vienna. Register at info@amyloidosis-austria.at with your name, number of participants and whether you will attend on site or online. [**View flyer**](https://www.amyloidose-schweiz.ch/images/agenda/attr-amyloidose-wien-okt2026.webp) [**Amyloidosis Austria**](https://www.amyloidosis-austria.at) [**To the agenda**](https://www.amyloidose-schweiz.ch/en/agenda) **NEW! ** ### [Amyloidosis information event in Lucerne – November 14, 2026](https://www.amyloidose-schweiz.ch/en/news/info-event-luzern-nov2026) **21 July 2026** We warmly invite you to the «Amyloidosis» information event, taking place on Saturday, November 14, 2026, from 9:30 AM to 12:00 PM at Lucerne Cantonal Hospital. From 8:45 AM we welcome you with coffee and croissants. **This event is fully booked. A waiting list is being kept.** - Talks by leading specialists on cardiac amyloidosis, current and future therapies, and cardiac imaging - Exercise with amyloidosis and being well supported through therapy - Followed by light refreshments and a personal exchange with the speakers at Restaurant Feingut - Free of charge and wheelchair accessible – one accompanying person per patient is welcome Registration required – deadline October 30, 2026 Saturday, November 14, 2026, 9:30 AM – 12:00 PM | Lucerne Cantonal Hospital, Building 31, main entrance, large auditorium. Please register online via the link below. [**Register now**](https://fluentis.eyevip.ch/events/PatientenveranstaltungAmyloidose2026/) [**Download invitation (PDF)**](https://firebasestorage.googleapis.com/v0/b/amyloidose-schweiz.firebasestorage.app/o/pdfs%2Fagenda%2FFluentis_Einladung_Amyloidose26_Litho3_digital.pdf?alt=media&token=28a5be53-d08d-4582-94b9-45a312ab940d) [**To the agenda**](https://www.amyloidose-schweiz.ch/en/agenda) [**All news**](https://www.amyloidose-schweiz.ch/en/news) ## What we do ### Support We provide support in medical and professional areas [**Learn more about our support services**](https://www.amyloidose-schweiz.ch/en/verein/der-verein) ### Awareness We raise awareness for diagnosis and promote mutual exchange [**Learn more about awareness initiatives**](https://www.amyloidose-schweiz.ch/en/ressourcen/informations-plattform) ### Research We support and promote research in the field of amyloidosis [**Learn more about our research activities**](https://www.amyloidose-schweiz.ch/en/forschung) ### Donate Your donation helps support patients and advance research [**Learn more about donation opportunities**](https://www.amyloidose-schweiz.ch/en/spenden) [**Contact Us**](https://www.amyloidose-schweiz.ch/en/verein/kontakt) Stronger Together ## Become Part of Our Community As a member of Amyloidosis Switzerland, you not only support our important work but also benefit from a strong network and mutual exchange. - Connect with other patients and family members - Receive regular updates and newsletters - Benefit from peer exchange and mutual support - Strengthen the voice of those affected together [**Become a Member**](https://www.amyloidose-schweiz.ch/en/verein/mitglied-werden) [**Learn About the Association**](https://www.amyloidose-schweiz.ch/en/verein/der-verein) ### Together We Are Stronger Every member helps raise awareness about amyloidosis and advance research. Your membership makes a difference ## Our Partners - ![Pfizer logo](https://www.amyloidose-schweiz.ch/images/sponsors/pfizer.svg) - ![MediService by Redcare logo](https://www.amyloidose-schweiz.ch/images/sponsors/mediservice.svg) - ![Alnylam logo](https://www.amyloidose-schweiz.ch/images/sponsors/alnylam.svg) - ![AstraZeneca logo](https://www.amyloidose-schweiz.ch/images/sponsors/astrazeneca.svg) - ![Bayer logo](https://www.amyloidose-schweiz.ch/images/sponsors/bayer.svg) - ![Johnson \& Johnson logo](https://www.amyloidose-schweiz.ch/images/sponsors/johnson-johnson.svg) - ![Medtronic logo](https://www.amyloidose-schweiz.ch/images/sponsors/medtronic.svg) - ![Abbott logo](https://www.amyloidose-schweiz.ch/images/sponsors/abbott.svg) - ![Alexion logo](https://www.amyloidose-schweiz.ch/images/sponsors/alexion.svg)