Our Goals
Comprehensive Support for Patients and Families
- Personal counseling and emotional support through experienced patients and healthcare professionals
- Provision of current, scientifically-based information materials in multiple languages
- Organization of regional support groups and digital networking opportunities for connection and mutual strengthening
- Referral to specialized amyloidosis centers and experienced physicians in Switzerland
Active Research Promotion
- Partnership with leading research institutions to support innovative amyloidosis studies
- Financial support for promising research projects and clinical trials
- Development and maintenance of the Swiss Amyloidosis Registry for improved research foundations and patient care
Awareness Building and Education
- Sensitizing physicians, nursing staff, and health authorities for earlier diagnosis
- Conducting medical conferences, webinars, and information events for patients and professionals
- Media work and public campaigns to increase visibility of this rare disease
Strong Voice for Patient Rights
- Representing patient interests to insurance companies, authorities, and health policy makers
- Advocating for improved coverage and faster access to innovative therapies
- International cooperation with other amyloidosis organizations for common goals
Improving Quality of Care
- Development of patient guidelines and quality standards for amyloidosis treatment
- Promoting continuing education for healthcare professionals and establishing centers of excellence