News

Current news and announcements from Amyloidosis Switzerland

Online Survey for People with Neurological Diseases - wtATTR Amyloidosis (Wild Type)

The validation of the AmyloScan questionnaire can help patients get an early diagnosis of neuropathies.

  • Conducting this research project is not possible without the support of patients.
  • Your help is therefore of crucial importance!
  • The survey is anonymous and voluntary.
  • Participation takes about 30 minutes.

Our New Flyer

Our new flyer: Together strong against amyloidosis is here! Our current flyer informs about the goals, offers and activities of the Amyloidosis Switzerland Association. Whether affected persons, relatives or interested parties - the flyer shows how you can get involved, exchange ideas and receive support.

Latest News

Information Brochures Available

Our information brochures about different forms of amyloidosis are available. These comprehensive guides can be found in our knowledge section.

Brochures on Transthyretin Amyloidosis with Cardiomyopathy

Detailed information about Transthyretin Amyloidosis with Cardiomyopathy (ATTR-CM).

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Brochures on Transthyretin Amyloidosis with Polyneuropathy

Comprehensive information about Transthyretin Amyloidosis with Polyneuropathy (ATTR-PN).

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Brochures on Immunoglobulin Light Chain Amyloidosis

Important information about Immunoglobulin Light Chain Amyloidosis (AL Amyloidosis).

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Guide for Movement and Training in Amyloidosis

Practical guide for movement and training in amyloidosis.

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Amyloidosis Switzerland Association Needs Support!

We are looking for motivated volunteers to help us with the following tasks:

  • Managing social media platforms like Facebook and WhatsApp groups
  • Maintaining exchanges with doctors, physicians and hospital centers and providing information for amyloidosis patients and relatives
  • Maintaining contacts with national and international organizations engaged in amyloidosis (multilingualism an advantage)
  • Regular meetings within the association to exchange information and insights and incorporate them into association work

Support can be provided by anyone and does not necessarily have to be by association members. Association work is generally unpaid and voluntary. Expenses such as travel costs etc. are reimbursed.

Anyone interested in actively participating in association work is welcome to contact the board, Markus Büel or Martin Bürgi.

Amyloidosis Switzerland Association

CH-6130 Willisau

info@amyloidose-schweiz.ch

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