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Current news and announcements from Amyloidosis Switzerland

Information Event 2025 Video Recording

The video recording of our 2025 information event is now available on YouTube.

A summary of all presentations will follow shortly.

Rencontre Médecins - Patients

November 7, 2025, 2:30 PM

A meeting between doctors and patients on the topic of amyloidosis in Geneva. The Amyloidosis Switzerland Association is also participating and presenting itself.

More information: www.hug.ch/cardiologie/amyloidose-cardiaque

Online Survey for People with Neurological Diseases - wtATTR Amyloidosis (Wild Type)

The validation of the AmyloScan questionnaire can help patients get an early diagnosis of neuropathies.

  • Conducting this research project is not possible without the support of patients.
  • Your help is therefore of crucial importance!
  • The survey is anonymous and voluntary.
  • Participation takes about 30 minutes.

The Association Amyloidosis Switzerland needs support!

We are looking for motivated helpers to support us with the following tasks:

  • Managing social media such as Facebook and WhatsApp groups
  • Maintaining exchange with doctors and hospital centers and providing information for amyloidosis patients and relatives
  • Maintaining contacts with national and international organizations engaged in the field of amyloidosis (multilingualism advantageous)
  • Regular meetings within the association to exchange information and insights and incorporate them into association work

Support can be provided by all people and does not necessarily have to be done by association members. Association work is basically unpaid and voluntary. Expenses such as costs etc. are reimbursed.

Anyone interested in actively participating in association work is welcome to contact the board, Markus Büel or Martin Bürgi.

Amyloidosis Switzerland Association

charitable organization

CH-6130 Willisau

info@amyloidose-schweiz.ch

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