News
Current news and announcements from Amyloidosis Switzerland
Peer to Peer - Affected coaching Affected
Martin Bürgi, certified myPeer Coach
Through support at eye level, as an expert from experience, I would like to provide motivating guidance to find a way to deal well with being affected.
- Resource and solution-oriented
- Clear yet flexible
- Open to new ways and ideas
As someone affected by amyloidosis myself, I know the challenges and questions that arise when receiving the diagnosis. I would like to accompany those affected and their relatives in orienting themselves in everyday life after receiving the diagnosis. Support them in finding a path that helps them deal with these challenges.
For this reason, I was able to train as a certified myPeer Coach at the myPeer Association in 2025.
Beyonttra (Acoramidis) approved in Switzerland as of December 18, 2025
December 18, 2025
On December 18, 2025, the Swiss regulatory authority Swissmedic approved the TTR stabilizer Acoramidis for the treatment of wild-type or hereditary transthyretin amyloidosis in adult patients with cardiomyopathy (ATTR-CM).
Membership in ProRaris
Since October 2025, the Amyloidosis Switzerland Association has been a member of ProRaris, the umbrella organization for rare diseases in Switzerland. This membership strengthens our position and enables better exchange with other organizations for rare diseases.
Information Event 2025 Video Recording
The video recording of our 2025 information event is now available on YouTube.
Summaries of all presentations available!
In the archive you will find detailed summaries of all presentations from November 15, 2025, including information on cardiac amyloidosis, AL amyloidosis, exercise and movement, and nutrition in amyloidosis.
Online Survey for People with Neurological Diseases - wtATTR Amyloidosis (Wild Type)
The validation of the AmyloScan questionnaire can help patients get an early diagnosis of neuropathies.
- Conducting this research project is not possible without the support of patients.
- Your help is therefore of crucial importance!
- The survey is anonymous and voluntary.
- Participation takes about 30 minutes.
The Association Amyloidosis Switzerland needs support!
We are looking for motivated helpers to support us with the following tasks:
- Managing social media such as Facebook and WhatsApp groups
- Maintaining exchange with doctors and hospital centers and providing information for amyloidosis patients and relatives
- Maintaining contacts with national and international organizations engaged in the field of amyloidosis (multilingualism advantageous)
- Regular meetings within the association to exchange information and insights and incorporate them into association work
Support can be provided by all people and does not necessarily have to be done by association members. Association work is basically unpaid and voluntary. Expenses such as costs etc. are reimbursed.
Anyone interested in actively participating in association work is welcome to contact the board, Markus Büel or Martin Bürgi.