Amyloidosis Switzerland
Together strong against amyloidosis. We support patients and families with information, counseling, and promote research for better treatment options.
What is Amyloidosis?
Amyloidosis is a rare disease in which misfolded proteins (amyloid) accumulate in organs and tissues. These deposits can impair the normal function of various organs. Early diagnosis and treatment are crucial for disease progression.
Rare Disease
Amyloidosis affects only a few people and is often diagnosed late.
Multiple Types
There are different forms such as AL, AA, ATTR amyloidosis with different causes.
Early Detection Important
The earlier amyloidosis is detected, the better the treatment options.
Affects Multiple Organs
Heart, kidneys, nerves and other organs can be affected.
Latest
New brochure “Living well with ATTR amyloidosis”
25 October 2026
We are pleased to present our new brochure for patients and family members, “Living well with ATTR amyloidosis”.
The brochure offers easy-to-understand information on ATTR amyloidosis – from early detection and diagnosis through current treatment options to living with the condition. A particular focus is on practical everyday questions, quality of life, and support and counselling services.
The brochure is also available in print – please ask your doctor.
The brochure was developed for Austria, Germany and Switzerland and contains, besides shared content, country-specific information and points of contact. Here you will find the Swiss version, which is in German.
ATTR amyloidosis information event in Vienna – October 29, 2026
14 September 2026
The association «Leben mit Amyloidose – Amyloidosis Austria» invites patients and their relatives to the information event «ATTR amyloidosis». The event is also live streamed – online participation is possible.
- Basics of ATTR amyloidosis
- Current therapies and new developments
- Mental strength in coping with the disease
- ATTR beyond the heart, e.g. orthopaedics and gastroenterology
- Participation on site in Vienna or online via livestream
Registration
Thursday, October 29, 2026, 5:00 PM | Hotel Zeitgeist Vienna, Sonnwendgasse 15, 1100 Vienna. Register at info@amyloidosis-austria.at with your name, number of participants and whether you will attend on site or online.
Next event
ATTR amyloidosis information event, Vienna
29 October 2026
5:00 PM (also live stream)
Vienna
To the agendaWhat we do
Awareness
We raise awareness for diagnosis and promote mutual exchange
Learn more about awareness initiativesResearch
We support and promote research in the field of amyloidosis
Learn more about our research activitiesDonate
Your donation helps support patients and advance research
Learn more about donation opportunitiesBecome Part of Our Community
As a member of Amyloidosis Switzerland, you not only support our important work but also benefit from a strong network and mutual exchange.
- Connect with other patients and family members
- Receive regular updates and newsletters
- Benefit from peer exchange and mutual support
- Strengthen the voice of those affected together
Together We Are Stronger
Every member helps raise awareness about amyloidosis and advance research.
Your membership makes a difference
