Exchange for Those Affected

Useful Websites and Links

Selpers

An online platform that supports patients and relatives with scientifically sound information and interactive training. It offers free, easy-to-understand content on various diseases to help those affected better understand and cope with their illness.

selpers.com

Amyloidosis Austria

A self-help group that aims to make a significant contribution to the earliest possible diagnosis of amyloidosis. It supports those affected through information events, promotes exchange between patients, and advocates for the best possible treatment for all patients.

www.amyloidosis-austria.at

Swiss Heart Foundation

The Swiss Heart Foundation is a non-profit organization committed to the prevention and treatment of cardiovascular diseases and strokes. It promotes research, educates the public, and supports those affected and their relatives.

swissheart.ch

Amyloidosis Research Consortium (ARC)

An international organization passionately committed to research, education, and support in the field of amyloidosis. Their work aims to advance innovative treatment options, improve the quality of life for those affected, and raise awareness of this rare disease.

arci.org

World Amyloidosis Alliance (WAA)

A global network that unites patient organizations for amyloidosis. Their goal is to promote exchange between patients, doctors, and researchers, raise awareness of the disease, and improve access to diagnostics and therapy worldwide. Through cooperation and knowledge exchange, the WAA supports those affected and their relatives with information, resources, and international initiatives.

www.amyloidosisalliance.org

Gesundheit Heute - Heart Failure in Amyloidosis

In the program Gesundheit Heute (Health Today), the topic of heart failure in amyloidosis is discussed. The guest is PD. Dr. med. Simon Stämpfli.